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Dr. Sherene Shalhub Receives PCORI Tier A Pipeline to Proposal Award

Dr. Sherene Shalhub, Assistant Professor, Division of Vascular Surgery, received a PCORI Tier A Pipeline to Proposal award for her project entitled “Vascular Ehlers-Danlos Syndrome (VEDS) Research Agenda Collaboration.” This one-year project started in October 2017 and provides $50,000 to form a team that will include patients with Vascular Ehlers-Danlos Syndrome (VEDS), clinicians, and researchers with a commitment to developing a patient-centered research proposal. They will develop the infrastructure and create channels for communication among patients, researchers, and stakeholders who are focused on VEDS. To this end Dr. Shalhub plans to create a formal community, which will include assessing the current information resources available, reaching out to members of the community, developing a communication strategy for stakeholder engagement and communicating with stakeholders via webinars, Twitter chats, and Google Hangouts, creating a REDCap survey network, and finally, setting up a website with infrastructure to support all of these activities. She will also set up a Research Consortium meeting for all stakeholders to discuss the current state of knowledge, assessment, and treatment for VEDS.